Breast Care Resources & Support Groups

Click here for the Dupont Resource Center for local resources, support groups and classes.

National resources and support groups:


General Resources

AMC Cancer Research Center's Cancer Information Line
1-800-525-3777
Professional cancer consolers provide answers to questions about cancer, support and information on free publications. Equipped for deaf and hearing impaired callers.

American Cancer Society (ACS)
www.cancer.org
Fort Wayne: (260) 471-3911
National: 1-800-ACS-2345 (1-800-227-2345)
Provides free, written information on breast cancer, support group information and referral to Reach to Recovery Program.

Association of Cancer Online Resources
www.acor.org
Online cancer information system that archives online support groups, information on treatments and clinical trials, links to other cancer education and advocacy groups on the Internet, and much more.

BreastCancer.net
National Breast Cancer Foundation, Inc.
Archives the latest news on breast cancer and allows quick and specific searches.

BreastCancer.org
www.breastcancer.org
Breast cancer education site including articles, news, newsletter and chats.

Cancerindex.org
www.cancerindex.org
Online index of cancer resources and Web sites providing information and support.

Cancerlinks.org
www.cancerlinks.org
A directory of other sites and resources on specific cancers. Available in 16 languages and offers international resources.

MEDLINEplus: Breast Cancer
www.nlm.nih.gov
Breast cancer news, general information, clinical trials and information available in Spanish.

National Breast Cancer Coalition
www.natlbcc.org
1-202-296-7477
A grassroots advocacy movement of more than 300 member organizations and thousands of individuals working through a National Action Network, dedicated to the eradication of breast cancer through action, policy and advocacy.

National Cancer Institute (NCI)
www.cancer.gov
1-800-4-CANCER (1-800-422-6237)
Provides free, written information on all aspects of breast cancer.

National Comprehensive Cancer Network: Breast Cancer Treatment Guidelines for Patients
www.nccn.org
Decision trees included in this site aid patients in choosing treatment and follow-up options. Also available in Spanish.

Oncolink
www.oncolink.com
The Abramson Cancer Center at the University of Pennsylvania has archived general information and resources and offers an online form to ask questions not covered on the site.

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Organizations/Advocacy Groups

BlackWomensHealth.com
www.blackwomenshealth.com
This breast cancer page provides information and statistics on breast cancer as it relates to African-American women.

Cancer Care, Inc.
www.cancercare.org
1-800-813-HOPE (1-800-813-4673)
Offers free assistance to cancer patients through counseling, education, referral and direct financial assistance.

Susan G. Komen Breast Cancer Foundations
www.komen.org
1-800-IM-AWARD (1-800-462-9273)
Offers information on all areas of breast cancer treatment and support.

National Asian Women's Health Organization (NAWHO)
www.nawho.org
This site explains the organization's program, Communicating Across Boundaries; The Asian American Women's Breast and Cervical Cancer Program, and offers a free download on related competency training.

abcd after breast cancer diagnosis
abcdbreastcancersupport.org
1-800-221-2141 (24 Hour Hotline)
Provides support and counseling through a 24-hour hotline. Trained volunteers, all of whom have had breast cancer, are matched by background and experience to callers whenever possible. Referrals for major cancer treatment centers available.

The Young Survival Coalition
www.youngsurvival.org
1-212-206-6610
An advocacy and awareness organization for young women who are diagnosed with breast cancer. The group offers support, information and education.

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Breast Reconstruction

American Cancer Society‚Ä"Breast Reconstruction after Mastectomy
@ www.cancer.org
A thorough explanation of reconstruction options and goals for the mastectomy patient.

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Breast Implants

Food and Drug Administration Breast Implant Information
@ www.fda.gov
1-888-463-6332
Information on choosing an implant, the associated risks, FDA regulations and manufacturers of implants.

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Cancer Treatment Database

National Cancer Institute
@ www.cancer.gov
The National Cancer Institute maintains a cancer treatment database providing prognostic, stage and treatment information on more than 1,000 protocol (treatment) summaries.

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Clinical Aspects

Cancer.gov: Breast Cancer Clinical Trials
@ www.cancer.gov
Information on choosing and participating in clinical trials, results of recent trials and resources for finding a trial.

Inflammatory Breast Cancer (IBC) Research Foundation
www.ibcresearch.org
General information, research news articles, discussion and commentary on inflammatory breast cancer.

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Exercise

YWCA
www.ywca.org
Fort Wayne: (260) 424-4908
National: 1-800-YWCA-IS1 or (202) 467-0801
Check with your local YWCA for its special exercise programs for breast cancer survivors called Encore.

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Hair Care and Make-Up

Look Good, Feel Better
www.lookgoodfeelbetter.org
1-800-ACS-2345 (1-800-227-2345)
Call your local ACS office. A program of the American Cancer Society that offers free class instructions on makeup application and hair care during cancer treatment.

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Male Breast Cancer

ACS:Male Breast Cancer Resource Center
@ www.cancer.org
Information and other websites on male breast cancer.

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Pregnancy and Breast Cancer

Pregnant With Cancer Network
www.pregnantwithcancer.org
1-800-743-6724 (specify Spanish or English, then press 3 for a local office, then ext. 308)
Connects pregnant women diagnosed with cancer to women who have lived through the experience.

Cancer.gov (PDG: Breast Cancer and Pregnancy)
@ www.cancer.gov
Information on treatment and other considerations for the pregnant breast cancer patient.

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Prosthesis

American Cancer Society
www.cancer.org
Fort Wayne: (260) 471-3911
National: 1-800-ACS-2345 (1-800-227-2345)
Ask your surgeon or nurse for references.

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Support Groups

American Cancer Society
www.cancer.org
Fort Wayne: (260) 471-3911
National: 1-800-ACS-2345 (1-800-227-2345)

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Survivorship Magazines

Coping with Cancer
www.copingmag.com
(615) 791-3859
Coping with Cancer is America's consumer magazine for people whose lives have been touched by cancer. This magazine provides knowledge, hope and inspiration to cancer patients, survivors and their families.

CURE
www.curetoday.com
1-800-210-CURE (1-800-210-2873)
CURE is a magazine for cancer patients and their families, providing information on recent announcements and diagnoses, treatment and prevention of cancer. Healthcare providers and patients can go online to sign up for a free subscription.

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Survivorship Resources

Imaginis
www.imaginis.com
Excellent web site for professionals and patients providing education and the latest news in breast cancer. Sign up for the online newsletter to receive concise summaries on the latest news and information on breast cancer.

Living Beyond Breast Cancer (LBBC)
www.lbbc.org
(610) 645-4567
LBBC is a not-for-profit educational organization committed to empowering all women affected by breast cancer to live as long as possible with the best quality of life. Programs include semi-annual large scale educational conferences, a quarterly newsletter, educational teleconferencing programs, outreach to medically underserved women and a consumer focused educational booklet.

Breast Cancer Information
breast.cancerinformation.com
Breast Cancer Information is a website created by Aventis Oncology for women with breast cancer.

National Coalition for Cancer Survivorship (NCCS)
www.canceradvocacy.org
1-877-NCCS-YES (1-877-622-7937)
Survivorship information and support. Cancer Survival Toolbox (available in Spanish).

Patient Advocate Foundation (Employment Issues)
www.patientadvocate.org
The Patient Advocate Foundation is a national not-for-profit organization that serves as an active liaison between the patient and the insurer, employer and/or debt crisis matters relative to the patient's diagnosis through case managers, doctors and attorneys. Patient Advocate Foundation seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of financial stability.

Reach to Recovery
@ www.cancer.org
Fort Wayne: (260) 471-3911
1-800-ACS-2345 (1-800-227-2345)
A program of the American Cancer Society, offers visits from volunteers. Call your local ACS unit for an appointment. Volunteers will share helpful information for recovery, including range of motion exercises for the surgical arm.

Cancer Support Community
www.cancersupportcommunity.org
(202) 659-9709
CSC is a national not-for-profit organization dedicated to providing free emotional support, education and hope for people with cancer. There are 20 facilities nationwide. The Web offers online support groups and an online newsletter for cancer patients.

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